Not even so much as a hair can fall from our head without the will of our Father in Heaven. I sincerely believe this — God has a plan. Through tears I ask you to tonight to pray for us as we make a decision soon as to where we will bring Ava for surgery to repair her brachial plexus injury.
She is in a huge amount of pain today as she is recovering from a myelogram yesterday. It bothered her nerves (more nerve trouble, imagine that)in the low part of her back. She can barely walk and is hunched over as she attempts to move. We weren’t about to leave Mayo until we had an appointment with a pediatric neurologist who is very confident Ava will bounce back by Friday. Very scary for us and just a ton of tears from Ava.
Mayo’s proposal is again a new and different one than we heard last week from Cincinnati as well as Washington University in St. Louis. Brachial plexus injuries in children Ava’s age are extremely rare and, in general, there isn’t a textbook for how to proceed. All are proposing nerve grafts and nerve transfers to get back some shoulder and elbow function by next spring, although it will never be close to normal. The hand and wrist are where the differing opinions come into play (still very minimal function) and we are made aware Ava has more than a decade of procedures and follow-ups to come. It gets super technical and I guess I just want to spare the details right now.
Here’s the point.
Ava will undergo surgery in about 6 weeks. May God gives us clear direction as to who will do it.
Then, her nerves will grow at the rate of an inch a month. May God give us patience as we wait.
Finally, please pray for our family. Our pastor certainly spoke words of wisdom the week after her accident. He said in the four years he has been serving our church, he has come to know that each and every pew in church has folks in it with a heavy load on their hearts. No two loads are the same but we all bear one.
It is so true. This is just our load right now. It hasn’t been easy for our kids, my husband or me. Yet, you walk the same road as we do…riddled with bumps and curves. I can’t express enough the appreciation I have that you have stood beside us on our journey. Please pray for us again tonight.